Ok, you'll never believe it... Yes, that's really Sunny Anderson that posted on mom's blog.. I found her website by clicking on her picture, and posted a comment on her blog.. she got back to us! We are so excited!!!!!
Here is my comment and her response. (I hope I'm allowed to copy this from her site!)
Lisa said...
Hi Sunny! My mom (rita), sister (amy) and I love your shows! Thank you for posting on my mom's blog... she's been diagnosed with Leukemia and is living away from home in a hotel conected to Roswell Park Cancer Institute in Buffalo, NY. When not at the hospital having procedures done or praying for good news, we are watching the Food Network. Mom just loves your energy, your recipes and shares the love you have for cooking. We hope to make some of your recipes when she's done with treatment in June! You have made my mom's year by posting on her blog! Thank you... I'm sure she'll be able to work a little bit harder today!
love. Lovely Rita, Amy and Lisa
Sunny Anderson said...
lisa, thanks for watching. it was a joy to see the smiles and happiness on your blog despite the circumstances. i just knew i had to post, you seem like my kind of people. please pass a big hug to rita. tell her watching my show while on the treadmill is all the rage and if she can do 30 minutes, she's a rock star! i usually start to struggle around the 25-minute mark :-). thanks so much for watching and blogging about it, it allows me to find you and invite you over to "my place" for some fun :-). take care a big huuuuge well wishes to rita!
You can find Sunny's blog by clicking on her picture from last posts comments.
More good news... last weekend while Sherry, Eva and I were visiting, we saw a ladybug on the outside of our window.. must have been gram visiting.. yesterday when I took sanchnloo out, loo was sniffing and scratching at the welcome mat and when i checked it out... there was a giant ladybug... loo was telling me! Then, when dad got to the hotel yesterday there was a ladybug in the bedroom! Finally, today at school.. a kid came back from the bathroom and said... uh.. there's a girl dressed up as a ladybug standing outside your door... I got up and saw that an older student was dressed up as a ladybug for her BOCES class today! HA!
They were all signs.. today mom went to her clinic appointment to meet with Dr. Wetzler and he said she was doing great, didn't have to continue on her antibiotics which made mom happy because they were HUGE pills...... then.. he said someone gave them the wrong paper to explain course 3, and it's not 70 days.. it's only 28!! Mom was even happier! Best news yet, mom asked if she could go home for a few days since her next appointment isn't until monday.. he said YES!!!! So she's currently on her way home.. for a very short visit, but none the less.. she'll be home! Thank you ladybugs. My heart is smiling so big right now.
that's it for now.
love.
Thursday, October 28, 2010
Tuesday, October 26, 2010
Day 90 (Course 2 Day 36)
Hello Everyone,
Things are going ok out here. We're settled into a pretty good routine and thankfully all of the jackhammering has finished for now. I'm sure it will be back to bother us more later but we're happy for the break now.
The second half of Mom's Course 2 got delayed a little bit due to some minor changes and her main Doctor being out of town. This is no big deal and we have learned to be flexible so we're just taking this time to try and get the minor stuff handled (which seems to be just as important as the major stuff). Mom's been trying to drink a lot of water, eat well and she is trying to exercise a little bit each day. We had a little scare earlier when she toppled over while looking for something in the fridge. Fortunately, she was already bent down almost to the ground and she didn't get hurt at all. What we did realize, however, was that she has very little strength in her legs to help her get back up. That proved to be quite a process but through a little patience and some creative thinking we were able to get her up and she was good as new. She's going to keep working on getting her strength back and hopefully these things will get easier for her.
Today she did 14 minutes on the bicycle in the gym downstairs while watching Sunny Anderson on Food TV. She just wheeled away until Giada came on and started making something gross. Then she realized she was working out and decided it was enough. She did a great job though - I was really proud of her. She even did a few exercises with a little 2 lb medicine ball.
I'll be with Mom through tomorrow and then Dad will be here for her appointment on Thursday. She'll hopefully have an easy day and have a nice relaxing weekend. We'll keep you all updated.
Thanks,
Amy
Things are going ok out here. We're settled into a pretty good routine and thankfully all of the jackhammering has finished for now. I'm sure it will be back to bother us more later but we're happy for the break now.
The second half of Mom's Course 2 got delayed a little bit due to some minor changes and her main Doctor being out of town. This is no big deal and we have learned to be flexible so we're just taking this time to try and get the minor stuff handled (which seems to be just as important as the major stuff). Mom's been trying to drink a lot of water, eat well and she is trying to exercise a little bit each day. We had a little scare earlier when she toppled over while looking for something in the fridge. Fortunately, she was already bent down almost to the ground and she didn't get hurt at all. What we did realize, however, was that she has very little strength in her legs to help her get back up. That proved to be quite a process but through a little patience and some creative thinking we were able to get her up and she was good as new. She's going to keep working on getting her strength back and hopefully these things will get easier for her.
Today she did 14 minutes on the bicycle in the gym downstairs while watching Sunny Anderson on Food TV. She just wheeled away until Giada came on and started making something gross. Then she realized she was working out and decided it was enough. She did a great job though - I was really proud of her. She even did a few exercises with a little 2 lb medicine ball.
I'll be with Mom through tomorrow and then Dad will be here for her appointment on Thursday. She'll hopefully have an easy day and have a nice relaxing weekend. We'll keep you all updated.
Thanks,
Amy
Saturday, October 23, 2010
Day 87 (Course 2 Day 33)
we had a great day today.. and really, are having a great weekend! we had a little birthday party for mom and sherry with some delicious sour cream coffee cake for breakfast.. candles and all, luckily instead of putting close to 115 candles, we opted for 2... we are trying not to get kicked out when we have so many days left to live here! at first, we didn't even think we were going to able to light the candles... but sherry pulled out a little MacGyver bag and found some flint and steel wool.. no just kidding.. she had matches... anyways.. the birthday party was fun and we enjoyed the cake!
I had to give the lovenox shot today.. i was worried at first, but it came right back to me and i didn't even hurt mom! that was a bonus!
We solved more of the worlds problems.. laughed a lot.. played a joke on dad (we told him mom picked wig #1, and he sounded soooo disappointed, while trying to be supportive) and just caught up on life. It was a great day for all of us and mom seemed so happy.
The girls left around 2:30 to go shopping and dad arrived shortly after... he thinks mom looks even better today than yesterday!
we cooked an excellent dinner... pot roast with potatoes and carrots and some fresh baked rolls.. we had 1 pot, a few ingredients, some beef broth from the kitchen downstairs, and made a great tasting dinner.. mom said it might and been the best ever... I think she's just getting her appetite back finally because everything has been tasting pretty good these past two days.. maybe it's just my touch!!
we've done a few laps in the hall.. mom can walk without her walker if she holds dad's hand.. she's getting stronger and stronger each day. We're definitely moving in the right direction.
It feels so good to be out here.. i love seeing mom getting stronger and better..
ok, i've babbled enough for the evening.. she sends her love and thanks all of you for thinking of her and sending your love and prayers.
love.
I had to give the lovenox shot today.. i was worried at first, but it came right back to me and i didn't even hurt mom! that was a bonus!
We solved more of the worlds problems.. laughed a lot.. played a joke on dad (we told him mom picked wig #1, and he sounded soooo disappointed, while trying to be supportive) and just caught up on life. It was a great day for all of us and mom seemed so happy.
The girls left around 2:30 to go shopping and dad arrived shortly after... he thinks mom looks even better today than yesterday!
we cooked an excellent dinner... pot roast with potatoes and carrots and some fresh baked rolls.. we had 1 pot, a few ingredients, some beef broth from the kitchen downstairs, and made a great tasting dinner.. mom said it might and been the best ever... I think she's just getting her appetite back finally because everything has been tasting pretty good these past two days.. maybe it's just my touch!!
we've done a few laps in the hall.. mom can walk without her walker if she holds dad's hand.. she's getting stronger and stronger each day. We're definitely moving in the right direction.
It feels so good to be out here.. i love seeing mom getting stronger and better..
ok, i've babbled enough for the evening.. she sends her love and thanks all of you for thinking of her and sending your love and prayers.
love.
Friday, October 22, 2010
Day 86 (Course 2 Day 32)
he everyone! i'm here with mom, aunt sherry and aunt eva, we are having a great time eating,chatting and solving the worlds problems!! we all got here early afternoon and went to the wig store.. let me tell you.. that was fun!!! here are some pics... which one do you think is the best?
We have had quite a feast out here... shrimp cocktail, spinach phyllo triangles, cheese and crackers... golumpki and apple pie.. oh and mom had several doses of potASSium... so for most of us, the eating experience was great!! for mom.. pretty good, but she can't wait to get rid of that potASSium some day!
it has been a great night. we're all pretty tired, and are looking forward to an restful night and a morning full or more snacks (sour cream coffee cake) and more.. oh and we're waiting for Doc Oc to start real early.. we're wondering if we should harness Sherry's kiddie skills and make some colorful posters for the window's beggin the construction workers to have an extra long coffee break in the morning! we'll see...
Thank you so much for your love, prayers, comments and cards. Mom is always so happy to hear from everyone.
will write more tomorrow...
love.
ok... so maybe none of these pics do mom justice, but we did pick one... and once aunt sue get's a hold of it, it will be beautiful!!
We have had quite a feast out here... shrimp cocktail, spinach phyllo triangles, cheese and crackers... golumpki and apple pie.. oh and mom had several doses of potASSium... so for most of us, the eating experience was great!! for mom.. pretty good, but she can't wait to get rid of that potASSium some day!
it has been a great night. we're all pretty tired, and are looking forward to an restful night and a morning full or more snacks (sour cream coffee cake) and more.. oh and we're waiting for Doc Oc to start real early.. we're wondering if we should harness Sherry's kiddie skills and make some colorful posters for the window's beggin the construction workers to have an extra long coffee break in the morning! we'll see...
Thank you so much for your love, prayers, comments and cards. Mom is always so happy to hear from everyone.
will write more tomorrow...
love.
Thursday, October 21, 2010
Day 85 (Course 2 Day 31)
Hello,
Well, today was interesting. Rita is doing well and getting stronger. She is so looking forward to her sisters and Lisa coming out for an overnight "girls night". Of coiurse, I will be sent home for the night. Rita's numbers were good today so we got to discontinue two pills and her and her nightly IV hook-up. She is really happy about that!! Rita had her central line discontinued today because it appeared to be a little dislodged. Thats OK because they will now put in a PICC line which will be in her arm and will be easier to maintain. They will do that Monday. All in all, we are in a good place right now. We did get some new info on course three. We had been under the impression that course three would last for 46 days. We found out toay that course three will be 70 days. That is a little disappointing because this seems like such a long process already. This information takes us well into June 2011 so it looks like we will be were a little longer. Whatever - as long as the outcome is positive. It always seems that we get a liitle bit of encouraging news which is immediately followed up by an additional challange. I guess that is just the nature of the beast. We remain determined to slay the beast and that is what we will do.
Hope this finds you all well. All of you are so supportive and we feel your prayers and love. Believe me, it is reflected back to you. When Rita is curred and we are back home, there will be one hell of a party.
OK enough - Love Dave.
Well, today was interesting. Rita is doing well and getting stronger. She is so looking forward to her sisters and Lisa coming out for an overnight "girls night". Of coiurse, I will be sent home for the night. Rita's numbers were good today so we got to discontinue two pills and her and her nightly IV hook-up. She is really happy about that!! Rita had her central line discontinued today because it appeared to be a little dislodged. Thats OK because they will now put in a PICC line which will be in her arm and will be easier to maintain. They will do that Monday. All in all, we are in a good place right now. We did get some new info on course three. We had been under the impression that course three would last for 46 days. We found out toay that course three will be 70 days. That is a little disappointing because this seems like such a long process already. This information takes us well into June 2011 so it looks like we will be were a little longer. Whatever - as long as the outcome is positive. It always seems that we get a liitle bit of encouraging news which is immediately followed up by an additional challange. I guess that is just the nature of the beast. We remain determined to slay the beast and that is what we will do.
Hope this finds you all well. All of you are so supportive and we feel your prayers and love. Believe me, it is reflected back to you. When Rita is curred and we are back home, there will be one hell of a party.
OK enough - Love Dave.
Wednesday, October 20, 2010
Day 84 (Course 2 Day 30)
Hi Everyone,
Not much to update today. The construction across the street has definitely added an interesting element to the process. It should be ending soon for the evening and we'll have some peace and quiet.
Mom's feeling a little better today than she was yesterday. We didn't do much. We went for a walk to get lunch in the cafe downstairs and Mom caught up on some of her papers. She looks like she might doze off for a bit here now.
She has a clinic appointment tomorrow but won't be receiving any Chemo. Hopefully each day will continue to get better and give her a little break until she starts Course 2B.
That's all for now. Mom hopes you are all well.
Love,
Amy
Not much to update today. The construction across the street has definitely added an interesting element to the process. It should be ending soon for the evening and we'll have some peace and quiet.
Mom's feeling a little better today than she was yesterday. We didn't do much. We went for a walk to get lunch in the cafe downstairs and Mom caught up on some of her papers. She looks like she might doze off for a bit here now.
She has a clinic appointment tomorrow but won't be receiving any Chemo. Hopefully each day will continue to get better and give her a little break until she starts Course 2B.
That's all for now. Mom hopes you are all well.
Love,
Amy
Tuesday, October 19, 2010
Day 83 (Stage 2 Day 29)
Hi everyone. It's been a long since we last posted. Dave was here most of the time and we were busy alot. I am finished with course 1 of part 2 of this chemo. I will start the 2nd half in about 10 days. That should give me a lot of time to rest. I felt like crap all week and my numbers were really down. I tried to get alot of rest. I have been walking the halls several times a day. Amy is out here with me now. This Friday, Sherry, Eva, and Lisa are coming out to spend the night Dave will go home on Fri night to let us be alone. Well, I got the news that not one of my siblings was a match. It is quite surprising since originally they said i had a 90% chance of a match, I want to thank my brothers and sisters for their effort in giving of their blood and making sure it got here. Jennifer from the lab says there are so many banks out there and she looked quickly and thought she saw some potential matches. That won't happen till maybe March so there is plenty of time. Well, getting tires and am heading off to bed. Thanks for all the cards and many prayers. It is overwhelming. Love to all, Rita
Thursday, October 14, 2010
Day 79 (24 in Course 2)
Hi Folks,
Sorry its been awhile agian. Nothing much new to report. Rita is doing well and she is continuing to walk the hallways without her walker. I think she gets a little stronger each day. Naturally, she has ups and downs but, overall, I feel we are going in the right direction. We have the clinic in the morning and Rita will get her last dose of chemo for this stage - that is the first half of course 2. I think she will get a little break from the chemo and we are hoping her numbers come up so that she in not neutropenic for a little while. We'll see. We have an appointment with Dr. Wetzler next Thursday (10/21) so we should get a status report on how she is doing then. She is hoping that her numbers are up because the girls (Sherry, Eva and Lisa) are planning to come out for a sleep over next Friday. It will all depend on her numbers but Rita is really looking forward to their visit.
That's it for now, Dave
Sorry its been awhile agian. Nothing much new to report. Rita is doing well and she is continuing to walk the hallways without her walker. I think she gets a little stronger each day. Naturally, she has ups and downs but, overall, I feel we are going in the right direction. We have the clinic in the morning and Rita will get her last dose of chemo for this stage - that is the first half of course 2. I think she will get a little break from the chemo and we are hoping her numbers come up so that she in not neutropenic for a little while. We'll see. We have an appointment with Dr. Wetzler next Thursday (10/21) so we should get a status report on how she is doing then. She is hoping that her numbers are up because the girls (Sherry, Eva and Lisa) are planning to come out for a sleep over next Friday. It will all depend on her numbers but Rita is really looking forward to their visit.
That's it for now, Dave
Wednesday, October 13, 2010
Happy birthday Mom!
We all hope you have a wonderful day full of rest, healing and happniess.
love you to the moon and back and more than all the raindrops!
love you to the moon and back and more than all the raindrops!
Monday, October 11, 2010
Day 76 (Day 21 Course 2)
Well, today was a pretty good day. Things are going well and Rita even walked the hallway of the hotel without her walker!! This is a pretty big step and we hope to be able to build on it as the days go by. We have the clinic in the morning and we'll see how her numbers are and if she needs any blood products. Rita is scheduled to get two types of chemo at the clinic tomorrow as long as her numbers are OK. Hopefully, it will go smoothly and we can get out of the clinic by early afternoon. We'll see.
Have a good evening and we'll post more soon.
Dave.
Have a good evening and we'll post more soon.
Dave.
Saturday, October 9, 2010
Day 74 (Day 19 Course 2)
Hello,
Today was another good day out here in Buffalo. We did have to go to the clinic because two of Rita's ports were glogged up and they would not flush this morning. That didn't take too long and Rita wanted to go to Walgreens afterward. So, off we went and found one just around the corner from our hotel. Rita wore her mask and walked around the store like she owned the place. It was good for her and we got some supplies that we nneded. The rest of the day has been nice and quiet with some rest and pills and IV and more rest. We are going for a walk down the hallway soon to finish up the exercise for the day. Our goal for tomorrow is to take a ride out to Niagara Falls. It is supposed to be nice so I hope it works out. It is good to see Rita be able to enjoy some normal activites as she continues through this difficult process. The hard work that Amy did this past week is really paying off as Rita is getting more fluids and is getting stronger each day. All in all, I feel things are getting better - I feel much better being out here with Rita.
That's it for today. Hope you all are well - we are doing good out here. Dave
Today was another good day out here in Buffalo. We did have to go to the clinic because two of Rita's ports were glogged up and they would not flush this morning. That didn't take too long and Rita wanted to go to Walgreens afterward. So, off we went and found one just around the corner from our hotel. Rita wore her mask and walked around the store like she owned the place. It was good for her and we got some supplies that we nneded. The rest of the day has been nice and quiet with some rest and pills and IV and more rest. We are going for a walk down the hallway soon to finish up the exercise for the day. Our goal for tomorrow is to take a ride out to Niagara Falls. It is supposed to be nice so I hope it works out. It is good to see Rita be able to enjoy some normal activites as she continues through this difficult process. The hard work that Amy did this past week is really paying off as Rita is getting more fluids and is getting stronger each day. All in all, I feel things are getting better - I feel much better being out here with Rita.
That's it for today. Hope you all are well - we are doing good out here. Dave
Friday, October 8, 2010
Day 73 (Day 18 Course 2)
Hi Folks,
Sorry it has been awhile since we've updated the blog. I am here with Rita and today we spent several hours at the clinic. Rita needed platelets before she could get her chemo and then she had to have a blood transfusion after the chemo. All this is normal and to be expected. Overall, Rita is doing good. She seems to be getting a little stronger and is doing much better at keeping her fluids up. Her liver numbers actually improved today as compared to Tuesday. That's really important as all of the chemo is processed through her liver and we need that to be in good condition. We are looking forward to a good weekend together - maybe even a ride out to Niagara Falls. Rita sends her love and wishes to thank everyone that participated in the golf tournament. She heard the food was great and the door prizes were also. Our words could never express our gratitude for all of our friends and family. We feel truly blessed.
That's it for now, Dave
Sorry it has been awhile since we've updated the blog. I am here with Rita and today we spent several hours at the clinic. Rita needed platelets before she could get her chemo and then she had to have a blood transfusion after the chemo. All this is normal and to be expected. Overall, Rita is doing good. She seems to be getting a little stronger and is doing much better at keeping her fluids up. Her liver numbers actually improved today as compared to Tuesday. That's really important as all of the chemo is processed through her liver and we need that to be in good condition. We are looking forward to a good weekend together - maybe even a ride out to Niagara Falls. Rita sends her love and wishes to thank everyone that participated in the golf tournament. She heard the food was great and the door prizes were also. Our words could never express our gratitude for all of our friends and family. We feel truly blessed.
That's it for now, Dave
Tuesday, October 5, 2010
Day 70 (Course 2 Day 15)
Well, today was not the best day. Mom was pretty weak and things just did not seem to go our way. We got to the clinic at 8am for blood work and by 11am still did not have much information. Mom needed a platelet transfusion before they could administer the chemo, then she had the chemo and then she had to have more transfusion. It was a long day and we finally busted out of there around 4pm.
The numbers from her blood work were pretty much what we expected. It seems so much has been put into this but it's becoming more clear that there's a lot more hard work that needs to be done. Mom's goal is to get off of the walker and be able to start being more self sufficient. This is going to be really critical when it comes time to do the Bone Marrow Transplant.
When we got back to the room I had to hook Mom right back up to our IV pole in here and get her going on her antibiotics. I made some homemade chicken noodle soup on our little hot plate. Mom's got all of her pills down and is ready to turn in to bed early after this not so special day. We are both looking forward to a good night's sleep. We hope you all have one as well.
Love,
Amy
The numbers from her blood work were pretty much what we expected. It seems so much has been put into this but it's becoming more clear that there's a lot more hard work that needs to be done. Mom's goal is to get off of the walker and be able to start being more self sufficient. This is going to be really critical when it comes time to do the Bone Marrow Transplant.
When we got back to the room I had to hook Mom right back up to our IV pole in here and get her going on her antibiotics. I made some homemade chicken noodle soup on our little hot plate. Mom's got all of her pills down and is ready to turn in to bed early after this not so special day. We are both looking forward to a good night's sleep. We hope you all have one as well.
Love,
Amy
Monday, October 4, 2010
Day 69 (Course 2 Day 14)
Well, today was an interesting day. It began just as any other regular day would... at 6am with a series of loud bangs and a shaking sensation. Not only are we learning tips required for the nursing profession, but tips required for the demolition of a building as well... which is what is happening directly across the street from our hotel room! I tried to take a video with my cell phone camera but since it was raining it just didn't come out so well. Just picture 3 giant cranes - one with a claw, one with pinchers and one with an over sized jackhammer bashing into the roof of a building. It was like Doc Oc from Spiderman never got called back for the movie sequel and had to find work in demolition in Buffalo, NY. Anyway, it was a pretty loud day and not the best for resting.
This morning when I did Mom's lovanox shot she said it didn't hurt but it immediately started spurting like a geyser in Yellowstone National Park. I've never been there, but I don't have to now. I know what it looks like in red. This is, I HOPE, because her platelets are low and we are anxious to see if the nurses at the clinic tomorrow have any suggestions to make sure this absolutely never happens again. Mom seemed to think everything was fine, but I was about ready to pass out and really - what's the sense of having your daughter there to take care of you if she's the one that needs the medical attention.
The rest of the day was thankfully low key. Mom has a very early appointment tomorrow and will be getting 2 chemo infusions. She's been pretty tired so hopefully it won't be too much of a challenge to get to and from the clinic tomorrow. After that, she's done until Friday with chemo and her numbers should start coming back up.
That's it for now.
Love,
Amy
This morning when I did Mom's lovanox shot she said it didn't hurt but it immediately started spurting like a geyser in Yellowstone National Park. I've never been there, but I don't have to now. I know what it looks like in red. This is, I HOPE, because her platelets are low and we are anxious to see if the nurses at the clinic tomorrow have any suggestions to make sure this absolutely never happens again. Mom seemed to think everything was fine, but I was about ready to pass out and really - what's the sense of having your daughter there to take care of you if she's the one that needs the medical attention.
The rest of the day was thankfully low key. Mom has a very early appointment tomorrow and will be getting 2 chemo infusions. She's been pretty tired so hopefully it won't be too much of a challenge to get to and from the clinic tomorrow. After that, she's done until Friday with chemo and her numbers should start coming back up.
That's it for now.
Love,
Amy
Sunday, October 3, 2010
Day 68 (Course 2 Day 13)
Today was a good day for Mom. I got on the road early so that Dad could get back for the golf event that Dan Porter so graciously organized. So early, in fact, that Dad got out of all of Mom's morning pills and shot! That's ok though - apparently I did a decent job today and Mom didn't think it hurt as bad as it has been lately. She said it was about one of the best ones ever.
Mom ate pretty well today and has been feeling pretty good considering everything she's going through. She was very happy to hear about all of the people that came to the Knolls for the event and all of the people that contributed to it. It sounded like a really nice day. The best part is knowing how many people are rooting for her and standing in her corner. This seems to be not just a physical challenge, but a mental one as well and these doses of spirit taste way better than her regular doses of pot"ass"ium and "crap"ulose.
She's all bundled up on the couch now putting off taking some of her pills. She's ripping coupons out of magazines and scratch and sniffing every perfume and air freshener advertisement in between commercials of various food related shows. Earlier, she had me put away some stuff she had collected into her drawer of "important papers" I noticed a "buy one get one free" admission to the Uptown Theatre amongst them. I don't think they have one in Buffalo, but it's so good to see her up to her old tricks.
Mom doesn't have to go to the clinic tomorrow since she has to get Chemo on Tuesday, so we are hoping to have a restful day for her. Again, thank you so much to everyone for your support today and Mom wishes everyone a great week.
Love,
Amy
Mom ate pretty well today and has been feeling pretty good considering everything she's going through. She was very happy to hear about all of the people that came to the Knolls for the event and all of the people that contributed to it. It sounded like a really nice day. The best part is knowing how many people are rooting for her and standing in her corner. This seems to be not just a physical challenge, but a mental one as well and these doses of spirit taste way better than her regular doses of pot"ass"ium and "crap"ulose.
She's all bundled up on the couch now putting off taking some of her pills. She's ripping coupons out of magazines and scratch and sniffing every perfume and air freshener advertisement in between commercials of various food related shows. Earlier, she had me put away some stuff she had collected into her drawer of "important papers" I noticed a "buy one get one free" admission to the Uptown Theatre amongst them. I don't think they have one in Buffalo, but it's so good to see her up to her old tricks.
Mom doesn't have to go to the clinic tomorrow since she has to get Chemo on Tuesday, so we are hoping to have a restful day for her. Again, thank you so much to everyone for your support today and Mom wishes everyone a great week.
Love,
Amy
Friday, October 1, 2010
Day 66 (Course 2 Day 11)
Hello Everyone,
I'm so sorry we didn't post yesterday. I honestly don't know where the time went.
Mom had an appointment at the clinic yesterday. We were there for a few hours getting an IV drip of some antibiotics that she'll have to take pro-actively through this whole course. She also got 3 more pills to take a day (yikes). These are just standard meds to take since her numbers are dropping and her immune system is compromised. The fun part is, Dad and I now have to hook her up to an IV every day for an hour while she gets one of the antibiotics through her port. I just got trained on this. It's pretty dummy-proof. I think we'll be able to manage.
We did have the pleasure of seeing Mr. Burns in the clinic yesterday. She wasn't assigned to Mom so we didn't have a chance to explain exactly how big the Potassium pills were. Instead, we disdained her from afar with our disapproving glares. I saved some of the pills for souvenirs so maybe we can bring them in to show her. I think anyone claiming these honkers are "small pills" should be forced to use one of them as a microphone while they deliver their speech about listening to the concerns of the patient at a local nursing college. Possibly a little harsh... I guess it's just easier to use a scapegoat since Leukemia isn't walking around in a white lab coat.
Mom had about 15 lbs of mashed potatoes and turkey for dinner last night. I can't believe how much she ate. It was literally more than I've ever seen her have for any Thanksgiving dinner. I made mashed potatoes and peas and we had a TV dinner that we heated up (we meaning me). I know - it doesn't sound very glamorous. Surprisingly, not a lot of glamorous stuff is happening out here. We were a little nervous Mom was going to throw up all of her dinner (we meaning me) but she kept it down and used it as an excuse to put off her pills and take a nap. She's so good at this stuff. I never see it coming. Since we're on Day 66 I'm just going to have to accept that I never will and on Day 200 I will still be reporting that Mom somehow tricked me into not having to take her pills for an extra hour. I've been calling her a tricksy little hobbit. Apparently, she's a hungry little hobbit too. I'm just glad she has her appetite back.
Dad will be getting here later today and we'll be doing the hand off. Things here otherwise are going pretty well. Our room at the Double Tree is great. The people here are so nice and we just love them. Even though Mom is going through such a bad experience, we feel so blessed. All of your love and support at home and the support from the people here is overwhelming. From the bottom of our hearts, thank you.
Love,
Amy
I'm so sorry we didn't post yesterday. I honestly don't know where the time went.
Mom had an appointment at the clinic yesterday. We were there for a few hours getting an IV drip of some antibiotics that she'll have to take pro-actively through this whole course. She also got 3 more pills to take a day (yikes). These are just standard meds to take since her numbers are dropping and her immune system is compromised. The fun part is, Dad and I now have to hook her up to an IV every day for an hour while she gets one of the antibiotics through her port. I just got trained on this. It's pretty dummy-proof. I think we'll be able to manage.
We did have the pleasure of seeing Mr. Burns in the clinic yesterday. She wasn't assigned to Mom so we didn't have a chance to explain exactly how big the Potassium pills were. Instead, we disdained her from afar with our disapproving glares. I saved some of the pills for souvenirs so maybe we can bring them in to show her. I think anyone claiming these honkers are "small pills" should be forced to use one of them as a microphone while they deliver their speech about listening to the concerns of the patient at a local nursing college. Possibly a little harsh... I guess it's just easier to use a scapegoat since Leukemia isn't walking around in a white lab coat.
Mom had about 15 lbs of mashed potatoes and turkey for dinner last night. I can't believe how much she ate. It was literally more than I've ever seen her have for any Thanksgiving dinner. I made mashed potatoes and peas and we had a TV dinner that we heated up (we meaning me). I know - it doesn't sound very glamorous. Surprisingly, not a lot of glamorous stuff is happening out here. We were a little nervous Mom was going to throw up all of her dinner (we meaning me) but she kept it down and used it as an excuse to put off her pills and take a nap. She's so good at this stuff. I never see it coming. Since we're on Day 66 I'm just going to have to accept that I never will and on Day 200 I will still be reporting that Mom somehow tricked me into not having to take her pills for an extra hour. I've been calling her a tricksy little hobbit. Apparently, she's a hungry little hobbit too. I'm just glad she has her appetite back.
Dad will be getting here later today and we'll be doing the hand off. Things here otherwise are going pretty well. Our room at the Double Tree is great. The people here are so nice and we just love them. Even though Mom is going through such a bad experience, we feel so blessed. All of your love and support at home and the support from the people here is overwhelming. From the bottom of our hearts, thank you.
Love,
Amy
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