Good evening,
Sorry about the two false posts - this computer is really sensitive. I'm sure its not me!!
Today went well. Rita's numbers are getting really low so she doesn't have the energy that she has had before. Eventhough, she still did 43 laps today which is remarkable considering where she is in the process. It was a little hard for her but, she did even more than I expected. The next couple of weeks are going to be the hardest. Rita basically has no immune system left and we will need to trust that her new doner cells will start to produce an new immune system soon. That is basically what will determine the success of this entire process - a process that started back in July 2010. The next two or three weeks are very important to the overall outcome and we are both aware of the fact that we are now in critical territory. As each day goes by and we have another positive result, we are even more encouraged that the overall outcome is going to be positive.
Tonight, Rita enjoyed some of Sherry's meatballs and spaghetti, we walked 23 laps and she is now taking a well deserved rest. Honestly, she is working so hard to make sure that she gets out of the hospital in 30 days. That is her goal and, knowing her, she will accomplish that.
So, things are really OK out here - we continue to take things one day at a time and to make sure we give thanks for all of the positive things that we have experienced throughout the journey we are on. There have been many times when we realize how much we are blessed to have all of you praying and supporting us. Please keep it up because it is working.
God Bless and Goodnight, Dave & Rita.
Monday, February 28, 2011
Sunday, February 27, 2011
Day 214 BMT 4
Good Morning,
Rita had a pretty good day yesterday and slept pretty good last night - while the normal interruptions were there. Looking forward to an easy Sunday with some excercise and resting. As I said before, its a good thing that there is not much to report as that means things are going according to plan.
So, we hope you all have a good day and we'll check in later, Dave & Rita
Rita had a pretty good day yesterday and slept pretty good last night - while the normal interruptions were there. Looking forward to an easy Sunday with some excercise and resting. As I said before, its a good thing that there is not much to report as that means things are going according to plan.
So, we hope you all have a good day and we'll check in later, Dave & Rita
Friday, February 25, 2011
Day 212 BMT 2
Hello,
Today was a very good day - Rita felt better than yesterday. Her appetite seemed to be better and her energy level was up a bit. We did a total of 60 laps today which is very good. There is not much new to report and I think that is a good thing. What we want is to have a gradual transition to her new cells without very much drama in the process. So, if I can keep posting that there is not much to report, that will be a good thing.
Rita's sense of humor is still in tact - she continues to keep the staff here in a light mood and they all want her as their patient (oh suprise). Even though this is a tremendous challenge, she still is concerned with how the people around her are doing. She thinks about how long they have to drive into work, how the roads are and who is taking care of their kids. Does any of this sound familar?
So, as you can see, it really feels somewhat normal - just in a different place. As the song goes - "She lifts me up" - without even trying. Aren't I supposed to be doing that for her? Oh well, some things will never change - I hope!!
So, enough rambling and Goodnight for now - Love, Dave & Rita
Today was a very good day - Rita felt better than yesterday. Her appetite seemed to be better and her energy level was up a bit. We did a total of 60 laps today which is very good. There is not much new to report and I think that is a good thing. What we want is to have a gradual transition to her new cells without very much drama in the process. So, if I can keep posting that there is not much to report, that will be a good thing.
Rita's sense of humor is still in tact - she continues to keep the staff here in a light mood and they all want her as their patient (oh suprise). Even though this is a tremendous challenge, she still is concerned with how the people around her are doing. She thinks about how long they have to drive into work, how the roads are and who is taking care of their kids. Does any of this sound familar?
So, as you can see, it really feels somewhat normal - just in a different place. As the song goes - "She lifts me up" - without even trying. Aren't I supposed to be doing that for her? Oh well, some things will never change - I hope!!
So, enough rambling and Goodnight for now - Love, Dave & Rita
Thursday, February 24, 2011
Day 211 - BMT 1
I bet you were hoping that I would have more to say - I hit the wrong key. Sorry!
As you can see by the BMT 1, we are now in positive territory. After all of the prepartion, we are finally in the home stretch. Our eyes are wide open and we know that there are potential bumps ahead of us but, we feel that Rita has demonstrated that she can and will handle them. I promise that I will do everything I can do to help her through the tough times and encourage her until she can once again gain control of her life. I can't wait until the day she jumps in the car and waves goodbye as she and Sherry head out on one of their shopping trips. It won't be long now.
Rita is feeling a little tired today which is to be expected. We are now entering the phase where her counts will go way down and her body will begin the battle with the new stem cells. As it has been explained to us, her new cells will recognize her body as foriegn and her body will recognize the new stem cells as foriegn so there will be a struggle to destroy each other. They have medicine to control this and will manage it so that there is a gradule "transfer of power" so to speak from her old system to her new system. That will be the main focus of the next few week and possibly months. Each person responds differently to this so we will have to wait, watch and see how Rita does. I am confident she will continue to be a superstar!!
We have walked over one mile today (35 laps) and are going back out for a walk in a little while (Rita wants to be sure to be back in time for Idol)so, as you can see - eventhough Rita is not feeling the best, she is still determined to give it her all. I am so proud and impressed with her dertermination. I know that this is what winners are made of - and Rita will win this battle.
So, Goodnight for now - God Bless, Dave & Rita
As you can see by the BMT 1, we are now in positive territory. After all of the prepartion, we are finally in the home stretch. Our eyes are wide open and we know that there are potential bumps ahead of us but, we feel that Rita has demonstrated that she can and will handle them. I promise that I will do everything I can do to help her through the tough times and encourage her until she can once again gain control of her life. I can't wait until the day she jumps in the car and waves goodbye as she and Sherry head out on one of their shopping trips. It won't be long now.
Rita is feeling a little tired today which is to be expected. We are now entering the phase where her counts will go way down and her body will begin the battle with the new stem cells. As it has been explained to us, her new cells will recognize her body as foriegn and her body will recognize the new stem cells as foriegn so there will be a struggle to destroy each other. They have medicine to control this and will manage it so that there is a gradule "transfer of power" so to speak from her old system to her new system. That will be the main focus of the next few week and possibly months. Each person responds differently to this so we will have to wait, watch and see how Rita does. I am confident she will continue to be a superstar!!
We have walked over one mile today (35 laps) and are going back out for a walk in a little while (Rita wants to be sure to be back in time for Idol)so, as you can see - eventhough Rita is not feeling the best, she is still determined to give it her all. I am so proud and impressed with her dertermination. I know that this is what winners are made of - and Rita will win this battle.
So, Goodnight for now - God Bless, Dave & Rita
Wednesday, February 23, 2011
Day 210 BMT 0
So the stem cell transplant is officially done.. mom's been unhooked from all the infusion stuff, and is now just on saline like normal! She didn't feel a thing, in fact, she was a bit disappointed (dad said) because she missed the whole thing! She was talking to the nurse, and before she knew it, it was over! She couldn't believe she missed her "tomato soup" infusion... guess it looked just like tomato soup. I guess thats better than it looking like slimer green ectoplasm or something weird! She also commented that she had a grilled cheese for lunch, so she figures it went perfect!
For the rest of the night mom's going to finish her dinner, snuggle into her polka dot fleece blanket and watch Idol.. she's looking forward to that.
We can't believe this day is here... and done.. it seems like yesterday we found out mom was sick, and then what it was going to take to get her better... now, 210 days later, she's made it through another giant hurdle on the road to recovery. we all know there will be bumps and maybe some pot holes.. but she's got a positive, relaxed attitude and she is ready to face the rest of this head on. Tomorrow we get to start counting up.. we have hope that by day 104 we'll be packing up the hotel room and heading home so we all, especially mom, can get back to living her life!
thank you again for the positive energy, the prayers and the love. we appreciate it more than you can ever know...
love.
For the rest of the night mom's going to finish her dinner, snuggle into her polka dot fleece blanket and watch Idol.. she's looking forward to that.
We can't believe this day is here... and done.. it seems like yesterday we found out mom was sick, and then what it was going to take to get her better... now, 210 days later, she's made it through another giant hurdle on the road to recovery. we all know there will be bumps and maybe some pot holes.. but she's got a positive, relaxed attitude and she is ready to face the rest of this head on. Tomorrow we get to start counting up.. we have hope that by day 104 we'll be packing up the hotel room and heading home so we all, especially mom, can get back to living her life!
thank you again for the positive energy, the prayers and the love. we appreciate it more than you can ever know...
love.
4:31 All done... whew.
Stem cells all done. Now mom will be monitored for 1 hour then she's free to move around. so far so good, dad said! We'll keep you posted. thanks for the prayers!
4:24 Almost done!
The stem cells are almost all in already.. it's going really fast! No problems and according to dad, mom's talking to her nurse about cooking, skiing, kids and everything else.. wonder how many questions that nurse is going to answer today!! Keep it going, mom!
BMT -1/BMT 0
Hi everyone. there has been a change in plans.. Today was supposed to be mom's day of rest, which she reminded dad of while he was taking her on her 22nd lap this morning.. guess she thought she could get out of exercising today.. .. well, after lunch mom and dad were informed that the stem cells arrived early, and that mom was possibly going to have the transplant today. She has been cleared by her doctors, and as of 4:10 pm, the transplant started. Dad promised to update me throughout the process, so I will do the same.
Let's get those prayers going.. good luck mom!!!!! We're all sending you strength and love.
Let's get those prayers going.. good luck mom!!!!! We're all sending you strength and love.
Tuesday, February 22, 2011
Day 209 - BMT -2
CHEMO IS FINISHED!!
Rita had her last two chemo treatments today and did excellent. No nausea or anything. Her appetite is still good and her energy level is remarkable. Today, she walked 66 laps for two miles. In addition, she lifted her three pound weights, did the stair stepper and worked with her putty to help her hand strength. She is determined to get through this with minimal complications so that she can get back to the hotel and then home as soon as possible. Rita'a attitude is super. She is joking with all of the staff and even sharing some of the funny things that have happened to her during her life. Its fun to watch! She is like her old self.
Tomorrow is her day of rest but we still plan on keeping up with the exercise (the two mile goal) and getting as much nourishment as possible. It is very encouraging to see how well her attitude is. I think she is so much better now that she is actually into the process and no longer worring about what it will be like. I feel that she is convinced that she can handle anything that comes her way. I know that she can and will.
So, goodnight for now. I think that tonight we will both sleep easy - confident that we are truly on our way to recovery and a complete cure.
God Bless, Dave & Rita
Rita had her last two chemo treatments today and did excellent. No nausea or anything. Her appetite is still good and her energy level is remarkable. Today, she walked 66 laps for two miles. In addition, she lifted her three pound weights, did the stair stepper and worked with her putty to help her hand strength. She is determined to get through this with minimal complications so that she can get back to the hotel and then home as soon as possible. Rita'a attitude is super. She is joking with all of the staff and even sharing some of the funny things that have happened to her during her life. Its fun to watch! She is like her old self.
Tomorrow is her day of rest but we still plan on keeping up with the exercise (the two mile goal) and getting as much nourishment as possible. It is very encouraging to see how well her attitude is. I think she is so much better now that she is actually into the process and no longer worring about what it will be like. I feel that she is convinced that she can handle anything that comes her way. I know that she can and will.
So, goodnight for now. I think that tonight we will both sleep easy - confident that we are truly on our way to recovery and a complete cure.
God Bless, Dave & Rita
Monday, February 21, 2011
Day 208 - BMT -3
Hello,
Rita did great today!! She handled her new chemo (the really hard one) with no problem what-so-ever. She even increased her trips around the nursing station to 52 laps. We know that, soon, things will start to decline but, at least she is coming from a position of strength. That should help her on the other side.
Tomorrow will be her last two doses of chemo. She is really looking forward to having that behind her. We are not kidding ourselves - we know that there are challenges ahead. I guess my point is that, so far, Rita has meet each challenge and I fully expect that she will continue to do so as we continue on through this process.
So, we will try to get some sleep tonight and not think too much about tomorrow. That seems to be the best way to get through this. We hope you all are doing good and look forward to getting together when this process has come to a successful conclusion.
Take Care and Stay Well, Love, Dave & Rita
Rita did great today!! She handled her new chemo (the really hard one) with no problem what-so-ever. She even increased her trips around the nursing station to 52 laps. We know that, soon, things will start to decline but, at least she is coming from a position of strength. That should help her on the other side.
Tomorrow will be her last two doses of chemo. She is really looking forward to having that behind her. We are not kidding ourselves - we know that there are challenges ahead. I guess my point is that, so far, Rita has meet each challenge and I fully expect that she will continue to do so as we continue on through this process.
So, we will try to get some sleep tonight and not think too much about tomorrow. That seems to be the best way to get through this. We hope you all are doing good and look forward to getting together when this process has come to a successful conclusion.
Take Care and Stay Well, Love, Dave & Rita
Sunday, February 20, 2011
Day 207 - BMT -4
Good Evening,
Just a short note. Today was another pretty good day with no complications. Tomorrow Rita will get an additional chemo drug which will be harder than what she has had so far. Hopefully, she will tolerate that OK also. Just two more days of chemo before the transplant - then, its all about the recovery. Everyone keep your fingers crossed.
Goodnight, Dave & Rita
Just a short note. Today was another pretty good day with no complications. Tomorrow Rita will get an additional chemo drug which will be harder than what she has had so far. Hopefully, she will tolerate that OK also. Just two more days of chemo before the transplant - then, its all about the recovery. Everyone keep your fingers crossed.
Goodnight, Dave & Rita
Saturday, February 19, 2011
Day 206 - BMT -5
Hello,
Another good day today for Rita. She slept pretty good last night even with all of the interruptions. They come into the room at least once every two hours all through the night so sleep comes at a premium. Rita tolerated her second dose of chemo well and has kept on schedule with her excersizing. I know that it is early in the process but we still feel good with each of her accomplishments. It makes her feel good and like she is doing everything she can to get better. Food is still tasting pretty good to her so she is trying to take advantage of that and eat all that she can. We konow that there will be days coming when she won't feel as good and hope all the gains we can make now will help to sustain her through the hard times.
So, for now, everything is going according to plan and we remain optimistic and in good spirits. Thanks again for all of you thoughts and prayers.
Take Care, Dave & Rita.
Another good day today for Rita. She slept pretty good last night even with all of the interruptions. They come into the room at least once every two hours all through the night so sleep comes at a premium. Rita tolerated her second dose of chemo well and has kept on schedule with her excersizing. I know that it is early in the process but we still feel good with each of her accomplishments. It makes her feel good and like she is doing everything she can to get better. Food is still tasting pretty good to her so she is trying to take advantage of that and eat all that she can. We konow that there will be days coming when she won't feel as good and hope all the gains we can make now will help to sustain her through the hard times.
So, for now, everything is going according to plan and we remain optimistic and in good spirits. Thanks again for all of you thoughts and prayers.
Take Care, Dave & Rita.
Friday, February 18, 2011
Day 205 - BMT Day -6
Good Evening,
Well, the day started out a little rough. Rita rushed to get ready, take her pills and down a cup of coffee so that we could be here to register for admitting by 6:30 AM. Well, between all of that and the nerves that were there, she got sick to her stomach and lost everything that she had put in. Luckily, she had her newspaper with her and that served as an adequate catch basin - almost, so the clean up wasn't too bad. Once we got to the floor (5 East) and she got settled into her new bed, she began to feel better. The rest of the day went fine. Rita tolerated her chemo very well and has already walked over a mile and worked out for 5 minutes on a sitting stair stepper. They have really emphasized how important excersize will be for her so we want to get right on it and not fall behind. Her appetite is good so far so everything looks good. Hopefully, tomorrow will be a repeat of today without the cookie tossing.
That's it for now - Take Care, Dave & Rtia.
Well, the day started out a little rough. Rita rushed to get ready, take her pills and down a cup of coffee so that we could be here to register for admitting by 6:30 AM. Well, between all of that and the nerves that were there, she got sick to her stomach and lost everything that she had put in. Luckily, she had her newspaper with her and that served as an adequate catch basin - almost, so the clean up wasn't too bad. Once we got to the floor (5 East) and she got settled into her new bed, she began to feel better. The rest of the day went fine. Rita tolerated her chemo very well and has already walked over a mile and worked out for 5 minutes on a sitting stair stepper. They have really emphasized how important excersize will be for her so we want to get right on it and not fall behind. Her appetite is good so far so everything looks good. Hopefully, tomorrow will be a repeat of today without the cookie tossing.
That's it for now - Take Care, Dave & Rtia.
Thursday, February 17, 2011
Day 204
Good Evening,
All went well today. Rita had her new line placed and tolerated the procedure very well. Then, after a physical exam, a B12 shot and a review of what the process will be leading up to and including transplant day, we were able to come back to the hotel. I was able to get some work done and Rita took a well deserved nap. We went out to dinner and had a nice meal at a casual restaurant. Now, we are relaxing, getting ready to watch Idol and will turn in early as we need to be to the hospital by 6:30 AM tomorrow.
Rita is ready for this. Even though there is always the fear of the unknown, there is also the desire to get this behind her so that she can return to a more normal life. When I look at what she has already been through and the number of days that have passed since we started this, I feel that this part of the process will also go very well and that Rita will continue to do outstanding - as Dr. Wetzler would say. Rita likes her new team of caregivers and that helps alot.
So, all in all, things seem to be pretty good.
Well, here we go!! Love, Dave & Rita.
All went well today. Rita had her new line placed and tolerated the procedure very well. Then, after a physical exam, a B12 shot and a review of what the process will be leading up to and including transplant day, we were able to come back to the hotel. I was able to get some work done and Rita took a well deserved nap. We went out to dinner and had a nice meal at a casual restaurant. Now, we are relaxing, getting ready to watch Idol and will turn in early as we need to be to the hospital by 6:30 AM tomorrow.
Rita is ready for this. Even though there is always the fear of the unknown, there is also the desire to get this behind her so that she can return to a more normal life. When I look at what she has already been through and the number of days that have passed since we started this, I feel that this part of the process will also go very well and that Rita will continue to do outstanding - as Dr. Wetzler would say. Rita likes her new team of caregivers and that helps alot.
So, all in all, things seem to be pretty good.
Well, here we go!! Love, Dave & Rita.
Wednesday, February 16, 2011
Day 203 - Back in Buffalo
Hello,
Well, we are back here in Buffalo and settled into our hotel room. Rita is feeling good and is ready to start the transplant process. We are having a relaxing evening watching Idol and preparing ourselves for the next part of the journey ahead of us. We will be over to the clinic early tomorrow morning and Rita will have blood taken, her central line placed and then a complete physical. After that is finished, we will be back to the hotel for one more night before Rita is admitted to start the chemo and the transplant. I will try to give daily updates so that you all can share in her progress and complete recovery. We both know how vested you all have become in Rita's journey and are deeply appreciative of your support and prayers.
This is a little brief but there is really not much to report yet, so, have a good evening and we'll check in later.
Take Care, Dave
Well, we are back here in Buffalo and settled into our hotel room. Rita is feeling good and is ready to start the transplant process. We are having a relaxing evening watching Idol and preparing ourselves for the next part of the journey ahead of us. We will be over to the clinic early tomorrow morning and Rita will have blood taken, her central line placed and then a complete physical. After that is finished, we will be back to the hotel for one more night before Rita is admitted to start the chemo and the transplant. I will try to give daily updates so that you all can share in her progress and complete recovery. We both know how vested you all have become in Rita's journey and are deeply appreciative of your support and prayers.
This is a little brief but there is really not much to report yet, so, have a good evening and we'll check in later.
Take Care, Dave
Monday, February 14, 2011
Day 201
Good Evening,
OK - here is the long awaited update. Sorry we haven't posted but there really hasen't been any news as Rita has been home just trying to get stronger and get ready for the stem cell transplant. Today we went to Buffalo to get the results of Rita's most recent bone marrow biopsy and the official "go" for stem cell transplant. As I am sure you can imagine, we were pretty anxious about the news we would get today. So here it is - first a Resident came in and gave us Rtia's numbers and they were all very good. He then gave us the results of her bone marrow biopsy and that was - no evidence of leukemia - the exact words we wanted to hear. So, then Dr. Wetzler came in and basically said "You have done well and now I turn you over to the transplant team - I'll see you in about a year. That is exactly what we wanted to hear.
So now, we will go back to Buffalo on Wednesday and start the stem cell process on Thursday. The acutal transplant date is 2/24/2011. After that, we will be in new territority and it will all depend on how Rita responds to the transplant. I could give you estimates of how long this next phase will take but, it is really an individual thing. We will just have to stay flexible and patient while keeping our focus on the ultimate outcome. As long as the outcome is that Rita is curred, it really dosen't matter how long it takes.
I will keep the updates more frequent now that we are entering a new phase. Please keep the prayers coming - you can't believe how much that has meant to Rita.
Take care and we Love You, Dave & Rita.
OK - here is the long awaited update. Sorry we haven't posted but there really hasen't been any news as Rita has been home just trying to get stronger and get ready for the stem cell transplant. Today we went to Buffalo to get the results of Rita's most recent bone marrow biopsy and the official "go" for stem cell transplant. As I am sure you can imagine, we were pretty anxious about the news we would get today. So here it is - first a Resident came in and gave us Rtia's numbers and they were all very good. He then gave us the results of her bone marrow biopsy and that was - no evidence of leukemia - the exact words we wanted to hear. So, then Dr. Wetzler came in and basically said "You have done well and now I turn you over to the transplant team - I'll see you in about a year. That is exactly what we wanted to hear.
So now, we will go back to Buffalo on Wednesday and start the stem cell process on Thursday. The acutal transplant date is 2/24/2011. After that, we will be in new territority and it will all depend on how Rita responds to the transplant. I could give you estimates of how long this next phase will take but, it is really an individual thing. We will just have to stay flexible and patient while keeping our focus on the ultimate outcome. As long as the outcome is that Rita is curred, it really dosen't matter how long it takes.
I will keep the updates more frequent now that we are entering a new phase. Please keep the prayers coming - you can't believe how much that has meant to Rita.
Take care and we Love You, Dave & Rita.
Friday, February 4, 2011
Day 191 Home Sweet Home
hi everyone... so sorry it's been so long.. we've been busy trying to get mom ready for the next phase in this process. I'll try to catch you up to speed...
last thursday mom was discharged to the hotel and aside from a routine clinic appointment, she was able to rest until the scheduled bone marrow biopsy on monday. she was so relieved to be in the quiet space of her second home.. not as cozy as washington drive, but better than the hospital! Dad's cooking was needed also... we're trying to fatten her up still!
Monday she wasn't able to have the bone marrow biopsy because her neutrophils weren't exactly where they needed to be.. mom was pretty bummed at first because this means she has to go to buffalo this coming monday for the biopsy.. but dad realized this week was supposed to be for rest according to the protocol mom's on, so we're actually right on schedule!
Tuesday we had family meetings.. Matt, Amy and I went to buffalo and we all met with the transplant team so we will know what to expect through this process. some of the information was old, but some was new and we were able to ask questions... surprisingly mom didn't have too many at that very moment, but each person we met with let mom know they'd be available to answer any questions at anytime! She was happy to hear that...
aside from the family meeting, mom's day was filled with lots of appointments preping her for transplant. wednesday was more appointments and finally the green light to go home! she came home wednesday night and has been relaxing ever since! she is catching up on her bills, doing her taxes and trying to rest as much as possible.
Mom does have to go on monday (like i said already) for the bone marrow biopsy and then we think she'll be home until transplant. Right now she's scheduled to go back around the 2/16, with a transplant date of 2/23, that's all up in the air and we'll let you know more as soon as we know...
we will have to be very flexible as we proceed from here... they've already told us that initally she'll be admitted into the hospital for around 36 days (5 days pre transplant chemo, 1 day of rest then transplant with 30 days monitoring closely.) If all goes well, then mom will be able to stay at the hotel for the rest of the 104 days. I know this is the scariest and most critical time for mom.. so keep sending those prayers and good luck wishes!
we'll post again soon..
love.
last thursday mom was discharged to the hotel and aside from a routine clinic appointment, she was able to rest until the scheduled bone marrow biopsy on monday. she was so relieved to be in the quiet space of her second home.. not as cozy as washington drive, but better than the hospital! Dad's cooking was needed also... we're trying to fatten her up still!
Monday she wasn't able to have the bone marrow biopsy because her neutrophils weren't exactly where they needed to be.. mom was pretty bummed at first because this means she has to go to buffalo this coming monday for the biopsy.. but dad realized this week was supposed to be for rest according to the protocol mom's on, so we're actually right on schedule!
Tuesday we had family meetings.. Matt, Amy and I went to buffalo and we all met with the transplant team so we will know what to expect through this process. some of the information was old, but some was new and we were able to ask questions... surprisingly mom didn't have too many at that very moment, but each person we met with let mom know they'd be available to answer any questions at anytime! She was happy to hear that...
aside from the family meeting, mom's day was filled with lots of appointments preping her for transplant. wednesday was more appointments and finally the green light to go home! she came home wednesday night and has been relaxing ever since! she is catching up on her bills, doing her taxes and trying to rest as much as possible.
Mom does have to go on monday (like i said already) for the bone marrow biopsy and then we think she'll be home until transplant. Right now she's scheduled to go back around the 2/16, with a transplant date of 2/23, that's all up in the air and we'll let you know more as soon as we know...
we will have to be very flexible as we proceed from here... they've already told us that initally she'll be admitted into the hospital for around 36 days (5 days pre transplant chemo, 1 day of rest then transplant with 30 days monitoring closely.) If all goes well, then mom will be able to stay at the hotel for the rest of the 104 days. I know this is the scariest and most critical time for mom.. so keep sending those prayers and good luck wishes!
we'll post again soon..
love.
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