Hello Everyone,
I'm so sorry we didn't post yesterday. I honestly don't know where the time went.
Mom had an appointment at the clinic yesterday. We were there for a few hours getting an IV drip of some antibiotics that she'll have to take pro-actively through this whole course. She also got 3 more pills to take a day (yikes). These are just standard meds to take since her numbers are dropping and her immune system is compromised. The fun part is, Dad and I now have to hook her up to an IV every day for an hour while she gets one of the antibiotics through her port. I just got trained on this. It's pretty dummy-proof. I think we'll be able to manage.
We did have the pleasure of seeing Mr. Burns in the clinic yesterday. She wasn't assigned to Mom so we didn't have a chance to explain exactly how big the Potassium pills were. Instead, we disdained her from afar with our disapproving glares. I saved some of the pills for souvenirs so maybe we can bring them in to show her. I think anyone claiming these honkers are "small pills" should be forced to use one of them as a microphone while they deliver their speech about listening to the concerns of the patient at a local nursing college. Possibly a little harsh... I guess it's just easier to use a scapegoat since Leukemia isn't walking around in a white lab coat.
Mom had about 15 lbs of mashed potatoes and turkey for dinner last night. I can't believe how much she ate. It was literally more than I've ever seen her have for any Thanksgiving dinner. I made mashed potatoes and peas and we had a TV dinner that we heated up (we meaning me). I know - it doesn't sound very glamorous. Surprisingly, not a lot of glamorous stuff is happening out here. We were a little nervous Mom was going to throw up all of her dinner (we meaning me) but she kept it down and used it as an excuse to put off her pills and take a nap. She's so good at this stuff. I never see it coming. Since we're on Day 66 I'm just going to have to accept that I never will and on Day 200 I will still be reporting that Mom somehow tricked me into not having to take her pills for an extra hour. I've been calling her a tricksy little hobbit. Apparently, she's a hungry little hobbit too. I'm just glad she has her appetite back.
Dad will be getting here later today and we'll be doing the hand off. Things here otherwise are going pretty well. Our room at the Double Tree is great. The people here are so nice and we just love them. Even though Mom is going through such a bad experience, we feel so blessed. All of your love and support at home and the support from the people here is overwhelming. From the bottom of our hearts, thank you.
Love,
Amy
Rita,
ReplyDeleteThanks for the lovely note. With everything you have going on, I was touched that you found the time to write!
We are in the final planning stages of our reunion. Tell Dave that we have some out of towners coming that have never attended before: Erica from Switzerland, Jan Grzesiak from Florida, Dan Fletcher from Virginia. We will miss you this year.
I know you have a long haul ahead of you, but hang in there and take it a day at a time. You'll be home before you know it! You have such a loving and devoted family...that's the best medicine of all!
Keeping you in my prayers.
Hugs to you and Dave,
Gail
Hi, it's me here in MA, sounds like your appetite is doing OK! There are many things (medications, tests) that I am sure some person who is very wicked invented and they never tried themselves! Sometimes just keeping your sense of humor helps and it sounds like that is all around you. What a great family you have! Take care and have a peaceful day, as Gail said, one day at a time. Love, Barbara
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