Day 191 Home Sweet Home

hi everyone... so sorry it's been so long.. we've been busy trying to get mom ready for the next phase in this process.  I'll try to catch you up to speed...

last thursday mom was discharged to the hotel and aside from a routine clinic appointment, she was able to rest until the scheduled bone marrow biopsy on monday.  she was so relieved to be in the quiet space of her second home.. not as cozy as washington drive, but better than the hospital!  Dad's cooking was needed also... we're trying to fatten her up still!

Monday she wasn't able to have the bone marrow biopsy because her neutrophils weren't exactly where they needed to be.. mom was pretty bummed at first because this means she has to go to buffalo this coming monday for the biopsy.. but dad realized this week was supposed to be for rest according to the protocol mom's on, so we're actually right on schedule! 

Tuesday we had family meetings.. Matt, Amy and I went to buffalo and we all met with the transplant team so we will know what to expect through this process.  some of the information was old, but some was new and we were able to ask questions... surprisingly mom didn't have too many at that very moment, but each person we met with let mom know they'd be available to answer any questions at anytime!  She was happy to hear that... 

aside from the family meeting, mom's day was filled with lots of appointments preping her for transplant.  wednesday was more appointments and finally the green light to go home!  she came home wednesday night and has been relaxing ever since!  she is catching up on her bills, doing her taxes and trying to rest as much as possible. 

Mom does have to go on monday (like i said already) for the bone marrow biopsy and then we think she'll be home until transplant.  Right now she's scheduled to go back around the 2/16, with a transplant date of 2/23, that's all up in the air and we'll let you know more as soon as we know...

we will have to be very flexible as we proceed from here... they've already told us that initally she'll be admitted into the hospital for around 36 days (5 days pre transplant chemo, 1 day of rest then transplant with 30 days monitoring closely.)  If all goes well, then mom will be able to stay at the hotel for the rest of the 104 days.  I know this is the scariest and most critical time for mom.. so keep sending those prayers and good luck wishes! 

we'll post again soon..

love.